The ELA association

Founded in 1992 and officially recognised as a non-profit organisation in 1996, the European Association against Leukodystrophies (ELA) brings together families fighting to overcome these rare genetic diseases, which destroy the myelin (the layer around nerve cells) of the central nervous system.

Every week in France, 3 to 6 children (20 to 40 in Europe) are born with these diseases. The ELA association is a link between the leukodystrophies and a network of solidarity for families.

More information about the ELA Association (in French)